ALASKA EPILEPSY PARENT LISTSERV
This listserv is for parents of children/youth with epilepsy in Alaska. It will be housed at the UAA Center for Human Development.
This listserv will be used to send out information about new developments and information resources, including webinars and other training opportunities. It will also be used to ask parents for information that could help improve the system of care in Alaska for children and youth with epilepsy. For example, you might be asked to fill out a brief, anonymous online survey.
The names and contact information of people in this listserv will be kept confidential. It will not be shared with any other group or organization unless people give specific permission to have their information shared. When funding for the current project ends, the listserv may be transferred to another organization so it can continue. If that happens, you will be asked if you want to stay on the list when it is transferred.
This listserv will only be used for new things relevant to epilepsy. It is not a newsletter and things will not be sent out on any regular schedule. We will avoid attachments by sending links to things online and posting new documents on our “Forms/Documents” page.
To sign up for the listserv, please send an email to firstname.lastname@example.org and send us your full name and any other contact information you would like to provide.