What are some online support resources?
Epilepsy Foundation e-Communities
Here parents can interact with individuals affected by epilepsy from around the world. There are threaded discussions and real-time chats. Selection of groups:
- Advocacy − This group discusses various advocacy issues, including local, state, and federal efforts
- Friends, Family, & Loved Ones − Support for those who give support
- SUDEP (Sudden Unexplained Death in Epilepsy) − A group for education, support and information sharing about this serious subject
- The Lounge − An informal place to hang out and get to know other members
- Teen Group − A place just for teens
- Entitled2Respect − Straight talk for teens about acceptance and epilepsy
- KidsClub −The friendly puppy Scoop invites kids of all ages to KidsClub – Come to the Playground! Visit the Funshop! Read stories. Play games with the puppy.
Find these and more online support groups at this eCommunities.
The closest Epilepsy Foundation affiliate to Alaska is Epilepsy Foundation Northwest located in Washington and Oregon. They make services available to families in Alaska. The EFNW family support groups might be especially helpful for families who travel to Washington or Oregon for services.
This is a website of the Epilepsy Foundation, first launching in 2009. It features family stories, ways to connect with other families, and a great deal of information shared in a family-friendly format.
This electronic mailing list is centered on pediatric epilepsy. It is designed to benefit families who wish to share comments, concerns, and questions regarding their experiences with pediatric epilepsy and/or other related issues.
(click on ALL BOARDS, then EPILEPSY SUPPORT GROUP)
This is a message board. It includes discussions about the warning signs of a seizure, medications, living with the aftermath, and reactions from family and friends.
- Epilepsy Forum − Interactive message boards and chat rooms. Find support and share information with others.
- Coping With Epilepsy Forum − Discussion for anyone affected by epilepsy.
- The Vagus Nerve Stimulation Message Board − Sharing experiences with VNS.